Understanding End of Life Decision-Making with and for People with Significant IDD

We will discuss the results of a qualitative research study of the ethical principles surrogate decision-makers apply when making end of life decisions with and for people with IDD who have not been able to communicate their preferences. We will share new web-based national resources and tools for end of life planning with and for people with IDD to support qualify of life and self-determination. a. Understand the ethical principles surrogate decision-makers apply when making end of life decisions with and for individuals with intellectual disabilities. b. Help guardians understand their role as advocates and capacity-builders for people with IDD, as well as decision-makers. c. Identify the various methods of supported and surrogate decision-making, and discuss the complexity of decision-making during end of life planning. d. Use and share new tools to assess quality of life and guide interviews with people with IDD and their families to assist with end of life decision-making.