Children with Anencephaly – the babies, their parents and professional support

Anencephaly means the absence of the cerebrum. The children survive a few days at the most. Their life can be described as a history of exclusion (e.g. humanhood, relationship, communication). Many parents decide to continue pregnancy. They use the time to experience togetherness with their child. Interviews with parents, scientists and health professionals reveal helpful support for the family and their dying baby.  Describe the core content of the medical condition anencephaly and its impact on the life of family and child Discuss 3 anthropological and ethicals problems concerning anencephaly Distinguish 2 divergent views of parents vs. health care professionals Describe 3 key elements of early relationships between parents and child  Use elementary forms of communication.